- K-T (Klippel- Trenaunay) Support Group
- CLOVES Syndrome Community
- Lymphangiomatosis & Gorham Disease Alliance
- Project FAVA
- PHACE Syndrome Community
- CureHHT
- AVM Survivors Network
- National Lymphedema Network
- National Organization for Rare Disorders
- PTEN Hamartoma Tumor Syndrome Foundation
- Sturge-Weber Syndrome Community
- Vascular Birthmarks Foundation