Single Ventricle Family Forum

We are pleased to host our 5th Single Ventricle Family Forum!

Please join us for this family-centered conference covering the latest medical updates on the care of and issues affecting single ventricle patients, as well as talks on quality of life issues that we hope will provide support and encouragement in non-medical ways.  Our speakers include physicians, parents, and adult Fontan patients.

Event Info

Single Ventricle Family Forum
St. Louis Children’s Hospital and Washington University Heart Center
Saturday, April 10, 2021, 8:30am-1:00pm
Event is Virtual. 
Free event, but registration is required (registration below). A link will be sent to families once they register. 

Agenda

Welcome 
Dr. Caroline Lee and Julie Stumpf, RN
Single Ventricle Family Forum Co-Chairs

Fontan: What’s On the Horizon 
Dr. Marion Ybarra 
Assistant Professor, Pediatric Cardiology
Washington University School of Medicine
Director, Comprehensive Fontan Clinic

Protein Losing Enteropathy after Fontan Surgery—What is This?  
Dr. Philip Barger 
Associate Professor, Internal Medicine-Cardiology
Washington University School of Medicine
Director, Center for Adults with Congenital Heart Disease

Pregnancy Planning for Women with Single Ventricles 
Dr. Kathryn Lindley 
Associate Professor, Internal Medicine-Cardiology
Washington University School of Medicine
Director, Center for Woman’s Heart Disease

Fontan Associated Liver Disease
Dr. Janis Stoll
Associate Professor, Pediatric Gastroenterology, Hepatology and Nutrition
Washington University School of Medicine

Q/A 
Dr. Marion Ybarra 
Dr. Philip Barger 
Dr. Kathryn Lindley 
Dr. Janis Stoll

Patient’s Perspective on Pregnancy  
Interview with Kelsey Beelman 
Fontan Patient 
Mother of two 

Moving the Single Ventricle Field Forward through Advocacy and Partnership 
Scott Leezer 
Fontan Patient 
VP of Government Relations, CURA Strategies 
 
Hindsight is 20/20:  Sharing Lessons Learned and Insights Gained 
Diane Pickles  
Mother of Jake, Adult Fontan 
Program Director, Project Singular, Additional Ventures 
Executive Leadership Team, Fontan Outcomes Network 

Don’t Forget About You 
Leslie Davis, MA, LCPC 
Mother of Judah, Teen Fontan 
Staff Therapist, Heart Center 

Q/A  
Kelsey Beelman 
Diane Pickles  
Scott Leezer 
Leslie Davis 
 
Past, Present, and Future of Single Ventricle Care at St. Louis Children's Hospital
Dr. Charles Canter
Professor, Pediatric Cardiology
Transplant Cardiologist and Director, Pediatric Cardiology Research
Lois B.Tuttle and Jeanne B. Hauck Chair in Pediatrics
Washington University School of Medicine

Heart Center Highlights  

Recognition of 2019 & 2020 Heart Center High Risk Infant Interstage Graduates 

Closing