The Williams Syndrome Center at St. Louis Children's Hospital offers coordinated care for the diagnosis and treatment of Williams syndrome (WS). Williams syndrome is a rare genetic disorder that is associated with developmental delays and medical problems affecting multiple parts of the body.
Features of Williams syndrome include:
- Facial features often described as pixie-like
- Feeding problems
- Developmental delays
- Characteristic personality features
- Blood vessel and other heart problems
- Problems with hormones
Additional health concerns associated with Williams syndrome include:
- Eye crossing
- Difficulty with potty training: increased frequency of needing to go to the bathroom, urgency leading to accidents, or the feeling of pain with urination
- Hernias and other problems related to connective tissue, such as loose or tight joints
- Scoliosis
Why Choose the Williams Syndrome Center?
The health issues that accompany Williams syndrome are not one size fits all. That’s why it’s important to be treated at a center with a team of specialists who have expertise in Williams syndrome — so that your child gets the individual treatment plan that best fits his or her needs. Our team is here to help you each step of the way — from which therapies to provide for your child now to what to watch for as your child develops.
